Aspen Leadership Group is proud to partner with the Follicular
Lymphoma Foundation in the search for a Head of Philanthropy and
Major Donor Lead, United States.
Reporting to the Director of Fundraising, the Head of Philanthropy
and Major Donor Lead, United States will lead the development and
delivery of the foundation’s United States fundraising activities,
engaging major individual and organizational donors through
meticulously planned cultivation events and the careful stewardship
of relationships that result in long-term partnerships with donors
in support of the shared ambition of finding a cure for Follicular
Lymphoma. This is a fully remote position based in the United
States. FLF’s offices, and the bulk of its programmatic activities,
are based in London. This role will be best executed by an
individual living in the eastern time zone of the United States to
facilitate collaboration with the London-based team. An
ability and desire to travel is essential.
The mission of the Follicular Lymphoma Foundation (FLF) is to find
a cure and find it fast. Follicular Lymphoma is far from a new
disease. Although first diagnosed almost a century ago in 1925,
progress in the treatment of Follicular Lymphoma has been
frustratingly slow. This is too slow for people living with this
condition. Research and science have progressed rapidly—survival
rates for some cancers have increased dramatically—yet FL receives
comparatively little funding and little attention.
The Follicular Lymphoma Foundation is the first charity dedicated
to finding a cure for Follicular Lymphoma (FL). Follicular Lymphoma
is a type of blood cancer affecting hundreds of thousands of people
across the world. Follicular Lymphoma is the second most common
Non-Hodgkin Lymphoma, yet despite its prevalence, most people have
never heard of it. This means it is not getting the attention or
funding it deserves. Follicular Lymphoma is not like most other
cancers. For most people, FL is not an aggressive disease. People
with FL will go through periods of active disease, followed by
remissions. Living with Follicular Lymphoma causes a range of
physical and emotional challenges, as well as confronting the
uncertainty of not knowing when and how the cancer will return.
Around a fifth of people with Follicular Lymphoma will develop an
acute form of the disease which can be highly resistant to
treatment and have poor outcomes for patients. Follicular Lymphoma
is currently incurable, but the FLF is committed to changing that
for patients living with FL now and for those who will be diagnosed
in the future.
With the right resources and the right people, plus the best and
most advanced research programs, a cure will be found—and fast. The
FLF leads new and determined efforts to find innovative treatments
and cures for Follicular Lymphoma. In pursuit of this, the CURE FL
Awards grant program seeks to catalyze scientific research focused
on FL. By focusing on high-impact studies this program supports a
clear path to clinical trials and the hope of clear benefit and
impact for FL patients.
The aim of the Follicular Lymphoma Foundation is that by the 100th
anniversary of the first diagnosis of Follicular Lymphoma there
will be a path to a cure including better and less toxic and
debilitating treatments that improve the personal journey of every
patient.
A bachelor’s degree or an equivalent combination of education and
experience is preferred for this position as is at least five years
of fundraising experience, with an emphasis on healthcare. The
Follicular Lymphoma Foundation will consider candidates with a
broad range of backgrounds. If you are excited about this role and
feel that you can contribute to FLF, but your experience does not
exactly align with every qualification listed above, we encourage
you to apply. All applications must be accompanied by a cover
letter and résumé. Cover letters should be responsive to the
mission of the Follicular Lymphoma Foundation as well as the
responsibilities and qualifications presented in the
prospectus.
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